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Seeking and Rejecting Certainty: Exposing the Sophisticated Lifeworlds of Parents of Disabled BabiesNewcastle University, janice.mclaughlin{at}ncl.ac.uk
Manchester Metropolitan University, d.goodley{at}mmu.ac.uk There are many debates in the social sciences about the certain and uncertain nature of subjectivity and knowledge. Often these debates create competing theoretical camps, each hell bent on refuting the other (materialist—idealists; modernist—postmodernists; structuralists—post-structuralists; medical—social). These critiques often fail to engage with the social and material lives of human actors, particularly when those actors occupy positions of relative marginalization. This article pitches these debates in emerging accounts of parents of disabled babies, which have developed from a three-year ESRC research study. 1 We highlight the ways in which parents adaptively and strategically use and refuse forms of certainty and uncertainty in order to configure ways of living with their children.We suggest that parents are nomadic but also settlers in the journeys with their children, and that modernist and postmodernist analyses both allow us to make sense of parents' situated agency within particular social, cultural and material locations.
Key Words: disability • families • social theory
Sociology, Vol. 42, No. 2,
317-335 (2008) This article has been cited by other articles:
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